a dash of pepper

Why, with cars, is there always something amiss with a solenoid valve? I think it's become one of those words like "consultant." If you don't know what you do for a living, but sometimes people give you money, you say "I'm a consultant." If you want to add an extra charge to a routine automobile service tab, you blame it on a solenoid valve. Jeff and I have once again braved the ped-unfriendly hoof-paths of West Annapolis while we await consultation on a Subaru's solenoid valve. And, by the way, drive belts.

Meanwhile...I've been having an interesting time exploring the topic of neurotypicality. As far as I know "neurotypical" is a term which exists only as a way to designate the counterpoint to brains with wiring that places them anywhere on the Asperger's/autism spectrum. This is a slowly developing interest of mine, which has accelerated recently in a quest to gain understanding of my kid and, by extension, myself.

I have only recently stumbled across the term BAP, or "broader autism phenotype," which is a term to describe people who may not be clinically on the autism spectrum (who may not, in other words, meet diagnostic criteria for even a nameable syndrome at the milder end of the spectrum, such as Asperger's,) but who have traits of behavior and personality that resemble, even if in a minor way, those of autism or Asperger's.

The thing is, I have exactly such a kid. So much so that every neuropsychological evaluator we've seen in the context of pursuing his alternative education--and there've been quite a few--has hastened, upon hearing of and witnessing his personality, to hand me an Asperger's parent questionnaire. He never scores in the diagnosible range. The tests are always fishing for an underfunctioning grasp of humor, which he does not have, and he loses quite a few points on the basis of having been a very tactile small child. But the fact remains that they always suspect it, and--to people who know Asperger's--his style of social interaction often seems suspiciously familiar.

I understand that the whole concept of the Broader Autistic Phenotype is controversial in some quarters. But logic and intuition lead me to believe that the extreme end of any neurological variation (especially one which is already established to exist on a spectrum--a continuum,) will be balanced by a minor end, where behaviors and characteristics may establish an individual as odd or quirky without imposing the functional handicap of autism, or the social handicap of Asperger's.

On that note, I recently took a quiz designed to score me relative to the BAP scale. Let me disclaim right up front that I am as wary as a person should be of granting too much credence to any "quiz" hosted by Helloquizzy or Cupid.com or whatever it was, but I still found the results striking. Here is what the summary of my results said: "You scored 102 aloof, 90 rigid and 82 pragmatic. You scored above the cutoff on all three scales. Clearly you are either autistic or on the broader autistic phenotype. You probably are not very social, and when you do interact with others, you come off as strange or rude without meaning to." Oops.

Oh, so now what is it Emily? Without a socially legitimized career label you're resorting to assigning yourself a social dysfunction label? No, no, I may be silly, but I'm not that silly. I don't require a label. But what I might appreciate is a means to cut myself some slack for having grown up feeling like such a weirdo-cum-alien who still doesn't seem to have the normal wiring where connecting with people on a social level is concerned. (A few people though. Jeff was extraordinary in his ability to grasp my wavelength which is why I miss that aspect so much.)

Here is another quote from the BAP analysis: "Given the low concordance of autism in siblings and fraternal twins compared to the concordance in identical twins, it is likely that autism results from the combination of a number of alleles, 3 to 15 or even more according to researchers." This makes sense. If you throw a handful of pepper in the soup, you get peppery soup. If you throw a pinch in it may be more palatable but it won't be unpeppered. My son Gabe is a little peppery. So is my brother Jim for that matter. Two people, each one degree of genetic separation from me, who would, I daresay, score higher than 102, 90, and 82.

So what does all this mean? Nothing. Well...something. It helps me look at my kid (as well as myself and my brother) in a kinder, more curious light. (not that the light was unkind before.) What is the significance of a differently-wired brain? What might be the advantages? Surely it's not a bad thing as long as one doesn't get too hung up on trying to grasp why one seems such an awkward fit with the "normal" coffee klatsch crowd. (Which I did. Get hung up, that is.) It's easier, though, to lose the hang-up if you realize it's not a character flaw, it's your wiring. The thing about Gabe is, he has no such hang-up. There's enough pepper in his soup that he doesn't even think about it. The thing about me is, I apparently live close enough to the cut-off point...I am, in other words, close enough to "normal" that I see across the fence and wonder if I oughtn't to be on the other side.